Sunday, December 17, 2006

Update 17, 2006

It looks like Taylor will be moving to Shriner's Hospital in Sacramento at the beginning of January. From what we understand, Taylor will be the first patient on a ventilator accepted to Shriner's Hospital. After Taylor's transfer from UC Davis Medical Center to Shriners, Taylor is scheduled to undergo surgery to install a phrenic pacer. After the surgery they will slowly wean her off of the ventilator. Taylor will continue her recovery and rehab at Shriners.

Taylor is starting to get up in her chair twice a day and even got to go outside to visit the dogs (Chico and Amanda) the other day. She continues to do her physical therapy once a day. She has started doing neck exercises. The excercises were difficult for her at first, but are starting to get easier the more she does them.

The doctors are talking about modifying her tracheotomy to hopefully allow her to speak. The schedule on this is unknown right now.

We would like to thank Round Table Pizza, Costco, and all of our friends and family who helped put together the fundraiser last Thursday. We wish that we could have been there to thank you in person. Everyone's support is felt here in Sacramento.

Taylor got a visit from her friend Xavier yesterday. They had a good time together. Taylor always enjoys visits from her friends. She does get very tired after her visits, so we have to keep visits short. Taylor's teacher sent Taylor her homework yesterday, so that should keep her busy for the week.

Taylor got a visit from the wives of the Kings basketball team last week. She now has an array of Kings paraphenalia, including a basketball, calendar, and a pom pom.

95 comments:

Anonymous said...

Awesome!!! Can't wait to see you.

Anonymous said...

Hey Taylor
We were at Round table Pizza on Thursday and it was jam packed !!! You are a very loved young lady !!

Anonymous said...

Hey Cutie...Just wanted you to know that the Funny Frogs and Brave Bears have a special book for you and "Miss Kerri" and I are hoping to bring it to you over our Winter Break from school. We love you lots and think of you often. All the children in Preschool remind us to blow you hugs n' kisses each day at Circle Time (not that we NEED reminding of course!!). Love ya lots!!
- "Miss Stacy"

Anonymous said...

Taylor,some six graders and a fifth grader are going to do a fundraisor for you.We are making boxes and puting things in them such as candy!We are definitly going to send you one.MERRY CHRISTMAS and hope you feel better!

Anonymous said...

Wow Taylor! That is AWESOME that the King's wives came to say Hello to you! I am a Kings Fan, so I can just imagine how special that was for you!! You have so many people pulling for you! We enjoyed the Pizza last week, alot of people came to support you and your family. I'm glad to hear about your upcomming surgery. I know it's not a fun thing to go through, but if it makes you more comfortable, then it's worth it!
I hope you and your family enjoy the holidays! Bye for now Sweetie.
Love,
Kim Gardner

auntie liss said...

Hello Tata bug- It's Aunt Liss
I just wanted to say THANK YOU for letting me stay all day sunday with you.I had the best time,just the two of us,painting your toes watching movie's and coloring pictures for your mom and dad, they loved them!I can't wait to tell santa how good you've been the next time he comes in for his hair cut. He will be so pumped!Now don't forget to keep counting when you do your exercises so Mrs."K" will give you a big fat "A". I love you soo soo much and can't wait to see you -Love Lissy
P.S. Presley Rae & Mackenzie RENEE Jayne Phillips say their coming to visit soon,so get ready!!! we love you a ton!!!

Pastor Pamela said...

Hello from Countryside Community Church!

Hello Taylor and family. We have been praying for you all non-stop. And we also have presents and a food box for you all. I will come in later today and drop them off for you. I look forward to seeing you!

Much love,
Pastor Pamela

Anonymous said...

Hi Taylor-
My family and I were away for a few days but I thought of you often. We will all continue to pray for you and good luck with the upcoming surgery. Lots of love from Courtney, David & Emma Adams

Anonymous said...

Hi dearest Taylor,
How are you doing? I hope you are
fine. I heard about the pizza and
how busy Round Table was. That is great news. It's almost Christmas.
Where ever you look everything sparkles, trees are decorated and bells are ringing. I know that this won't be a fun filled Christmas for you but I hope that you will have some joy.
I am praying for you everyday
Taylor. I know that there are alot of people doing the same thing.
Everyone loves you (even if we don't know each-other). It seems like you have become everyone's child and we all wish you the best of everything.
I have to go for now but remember that you are always in my thoughts and prayers.
Sleep with the angels tonight sweet little girl.
Good night.
Judy B. (Travis's grandma)

Anonymous said...

Hi Taylor,
Thinking of you and your family everyday. Hugs and kisses to you and mom, dad and Tanner.
Lovexox Aimee Proehl

Anonymous said...

Taylor and Tammy, we think about you everyday and want you to know lots of people love you. Went to roundtable and it was crazy. Tammy take care of yourself. Love, Kyle

Tricia said...

Thinking about you constantly- always getting comments and questions on your pin. Hoping, praying, keeping our fingers crossed, sending it out to the universe...I bet your wishing you were home for Christmas. I love that you have lights up in your room. Thank goodness Santa knows where you are no matter what!! I'M HOPING YOUR HAVING A HAPPY DAY!

Anonymous said...

hope everything keeps going well for you ,this is awesome. i hope your christmas is filled with peace and hope and love, i wish you all the best. keep uo the good work and we are routing for yuo from mangrove medical group....

merry christmas and a happy new year....

Anonymous said...

Taylor, Tammy and family,

Taylor you are such an amazing young girl. I think that Santa knows how good you have been this year, and I hope that he brings you something very special. Keep up the good work. I have you and your family in my daily prayers. I wish you and the rest of the family a Merry Christmas and a Happy New Year.

Brenda (Lowrey) Whitehead & Family

The Robertsons-Rod, Sheri, Sophie, Scott, Ross said...

Merry Christmas, Taylor!
Santa will be visiting tonight (did you leave him a cookie?) and our biggest Christmas wish is for you and other children in hospitals around the world to be smiling on Christmas morning. You are a special, brave little soul and a reminder to all of us that faith, hope and love are special gifts in life. We hope to come see you soon if you aren't too tired. With Love, The Robertsons-Rod, Sheri, Sophie, Scott and Ross

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