Friday, June 22, 2007

June 22, 2007

Well, Taylor is home!!! Taylor has been home for about 1 month now and is doing very very well. She is eating and drinking and is smiling a lot more. She has seen many of her friends and family and has loved visiting with them as well as being able to snuggle in her mommys bed however she doesn't like to leave her house very much. Taylor will be starting school in August at Chico Country Day. She is a little nervous about returning to school but we all know she will do great once she is there and settled. Taylor is getting ready for Christmas which the family will celebrate in the next few weeks. She has wanted to open her presents for so long and is ready for all the Christmas lights. However she insists on getting a "real" tree instead of a "fake" one. Her family is doing their best but they are pushing for the "fake" tree. Her neighbors are all wonderful and some have even started getting out their Christmas lights to put up as well. She loves spending time with her little brother and he has become such a big helper. He stops what he is doing if her foot or hand falls off her chair and runs over to help pick it up and opens the doors for her all the time. They are very good for each other. The family would like to make sure everyone knows how wonderful all the love and support has been throughout all of this. It has made the transition for them so much better. The family thanks you all so much and they will try to post again soon.

Thursday, May 17, 2007

May 17 2007

Taylor has been doing really well the past few days. We forgot to mention that Taylor has lost her first tooth. She was very excited and was so excited when the tooth fairy left her 45 cents and a little mermaid toy. She is even more excited because she was told Tues. the 22 she would be going home. She has had a smile on her face ever since. She surprised her Grandma Judy today with a visit her house and to see Taylors horse Lady. Taylor has been getting out of the hospital every day lately and really enjoying herself. As long as everything remains in good condition she will be home on Tues.

Thank you all so much for all the support and all the emails etc. that have been sent to the family. It has meant so much to them.

Saturday, May 12, 2007

May 12 2007

Taylor is doing well. She has spent the past few days on the vent and hasn't been able to go out. Nothing major was wrong, just a little mucus in her lungs and the vent helps her out when things like that happen. Tomorrow is mothers day and she will be able to spend a few hours out of the hospital. Her mom is so excited. Taylor was visited by Romy, a girl in Chico who had her jars all over town to help raise money for Taylor. Taylor enjoyed the visit and loves the jar Romy brought her. Taylors brother has been by several times to see her and she can't wait to get home. Hopefully only a few more weeks and the family will be home.

Some of Marsh Jr. High's students are putting on a benefit for Taylor. Nicole Hill, Corinne Kamrar, and Keleey Butterfield are putting on a benefit called "Tap your Toes for Taylor" at the Chico Theatre Company located at 166 Eaton Ave. on May 19 at 8:00 pm. Tickets are $10 a piece. The Full Force Hip Hop and Jaz company, Chico Company Ballet, and the Oliver Academy of Irish Dance will be performing. You can purchase tickets at Marsh Jr. Hig(after school), Matson and Isom, Chico Country Day preschool, or Chico Creek Dance Center. A great night of dancing, food and raffles. Any questions please call 530-345-1766.

The family continues to be thankful for all the love and support everyone has given them. Thank you all so much.

Monday, April 30, 2007

April 30, 2007

We have been very busy with all of Taylors discharge work and all of her progress lately but I thought it was important to update everyone on a few things. Some of you may have heard by now that the May 1st go home date is no longer havppening. I would like to update everyone as to why. Back in Feb. 2007 we contacted Enloe Hospital in Chico to see if they would take Taylor on as a vent patient. We were denied. Ever since Feb. Shriners Hospital has been working on finding a company to accept Taylor. Taylor is considered a high liability due to her vent and trach. We have had all of our other home care needs in order for weeks and rady for discharge except the vent care. Last week we contacted Enloe again for a second review. They denied us again. From what I have heard they said the y did not want to acceept new patients due to Enloe wanting to close down the In Home Vent Care program. We ceived this news last Thursday. Shriners kept going and thankfully they found a company in Sacramento who will take Taylor as a patient. Now she can come home. Many patients are not able to go home if thye can not find care in their area. Many patients move to the town that will service them. Again, luckily, the company in Sacramento will service us.

The news media contacted me for an update on Taylor as they have several times in the past. We told them about Enloe and the problem we had had with them. The media contaced Enloe to get their side of the story and were told that Enloe hadn't heard of Taylor and that they never denied us. I find it hard to believe they can deny someone twice for the same patient and never know who the person is. Since the media has contacted Enloe, I have received several messages from their rep saying how Enloe would love to help out in any way they can. I want it to be clear that we are still using the company in Sacremanto as they are responsible for Taylor coming home. As you all knwo Taylor has had her whole world turned upside down in the last 5 months. She has had to get used to nurses picking at her, different doctors, bad food, even not being able to scratch her nose if she wants to (along with many other things we take for granted.) but the whole time she does it with a smile on her face and a big heart towards everyone. And still when you ask her what she wants to do it is to go home and get in my mommy's bed. You all have been so wonderful in your love and support towards Taylor, that I feel you should be aware of not only our progress and accomplishments but also the setbacks we face that come directly from our community. I can't tell you how wonderufl the people at Shriners have been in contributing to Taylor's progress and getting home. Dr. McDonald has been magnificent and Taylor could not be in better hands. We should be home in 2-3 weeks and are blessed everyday for the continued love and support you all send our way.

On a little lighter note, Taylor had her very first day pass on Saturday!!!! It was AWESOME!!! She was able to go to see her Aunt Lissy at work, she went to lunch, she played with her cousins. She had a great time. She didn't get nervous or anything. It was one of the best weekends we have had in a very long time. On Sunday she had her horses stop by the hospital and loved it so much. She was able to feed them with her mouth!!! She was so excited to tell me how she put the food in her mouth and the horses just ate it up without biting her. She really is doing well and I know will continue to do so.

She is doing really well on her bike. She is able to stay on it for the whole hour everyday and even pushes it a little harder these days. She is hooked up to the stimulators that make her leg do the work, but she is really doing great. She still isn't eating the hospital food, she says its really bad but she is gaining weight. We are still planning to do Christmas when we get home. She can't wait. She can't believe that our neighbors have said they would put their lights up for her. We will continue to keep you posted and thank you from the bottom of our hearts for all your love towards Taylor. It is so wonderful.

Friday, April 27, 2007

Update April 27, 2007

We are sorry it has been such a long time since our last update. Everyone has been very busy. It looks as if Taylor will be moving home to Chico soon. She is expected to be discharged the first or second week in May. Taylor is so excited to go home! She's looking forward to the Christmas celebration that was promised to her upon arrival. There are plans for Christmas lights, a tree, and all the presents that she received in December.

Taylor has enjoyed getting in her chair a lot more these days. She even went on a field trip the other day to the zoo. She was a little anxious at first, but was soon having a great time. Taylor has been going downstairs for school and the teacher said she is doing very well. Taylor got to get inside the family's new van the other day. The van is equipped with a lift and seats for Tanner and friends in the back.

The May 5th fundraiser is only a week away. Please join us at the Elks Lodge in Woodland at 5:30 pm for dinner and dancing. Tickets can be purchased at the door for $40 or by calling Melissa Phillips at (530) 669-7156 or (530) 666-1450.

Thanks for your continued love and support.

Monday, April 9, 2007

April 9 2007

Sorry it has taken so long to update everyone. Everyone has been very busy. Taylor had a great birthday. She is now 6 years old. She was able to have a "spa day" with a few of her girlfriends. The party was great and everyone had fun, but Taylor was extremely tired towards the end. She loved all of the presents and phone calls from everyone. Easter was a great day too. She was able to go down stairs and do an Easter egg hunt and even take a trip outside.

She is doing much better with her breathing lately. She has taken a few trips outside and has enjoyed them very much. She is continuing to ride her excersize bike and go to school. She is getting up more and more into her chair. The doctors are still hopefull that May 1 2007 will be the target date for going home. Taylor is thrilled!! ( so is the rest of the family) She wants to go home so bad and see all her friends and "get into my mommy's bed".

It has been a very long and exhausting journey but the family is so thankful to everyone for thier continued love and support.

Wednesday, March 28, 2007

Update March 28, 2007

This is a big week for Taylor, as it is her birthday this Friday, March 30. Taylor will turn six. She is excited to see some of her close girlfriends that will be coming down on Saturday for a Spa Day at Shriner's Hospital!

Taylor and her family plan to spend the remainder of the weekend taking it easy. Taylor has moved out of ICU and is now back on the third floor. She is breathing with assistance from the pacer during the day and remains on the ventilator at night. The doctors have not determined the reason Taylor was not getting the appropriate volumes with the pacer, but everything seems to be working well now.

Taylor is back to her same daily routine of spending the morning with her teacher and the afternoon doing physical therapy. She is once again doing her physical therapy on the bike.

Tomorrow is the lunch at the Arbuckle Golf Course to benefit the Taylor Parker Hope Fund. For more information, see the March 1, 2007 blog update.

Thanks for your continued love and support!