Taylor underwent surgery yesterday to install a phrenic pacer. Taylor's diaphragm is in good condition. During surgery the doctors made sure the pacer was functioning properly and tested it to make sure that Taylor's diaphragm was working with assistance from the pacer. It turns out that during the test, the pacer only needed to be set at a rating of 0.9 out of 10 in order to assist Taylor's diaphragm in function properly. The doctors were very pleased with the outcome of the surgery.
Taylor will have about 10 days to recover before the pacer is turned on and the doctor's begin weaning her of the ventilator. After that the doctor's predict that it will take about two weeks to completely wean her off of the ventilator and have her breathing with assistance from the pacer. After Taylor is breathing with assistance from the ventilator, a couple of changes will have to be made to Taylor's tracheotomy in order for her to be able to talk.
Taylor woke up from the surgery in a good mood. She continues to be very brave and a great patient. We want to thank everyone for their continued support. Taylor always enjoys reading your e-mails and well wishes.
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21 comments:
Good job chicky, I'm glad the sx went well! Keep working hard!
Big hug, Marianka
Hi Taylor,
I am so glad to hear that your surgery went well and that you are adjusting to being at Shriners. You are a very brave girl!! I can't wait to come visit you again and see your new pink room and of course that great smile of yours! Caleb got a huge smile on his face when I told him all about your Cinderella doggie and we have a picture for you of his doggie Kobe!!
We miss you and love you lots!!
Miss Kerri and Caleb
Taylor you are such an inspiration. Keep up the hard work. I think about you every day and I have never even met you. That is how speical you are. There are people thinking and praying for you all over the world and that tells me you you must be a very special girl!!!! You should be very proud of yourself because I know your mommmy and Aunt Melissa are!!!
Knecht's classroom comments
Tyler was the first to arrive. He says "Come back to school!" Brendan and Caleb say "We want you to come back". Travis says "I love you Taylor" Bailey says "I love you." Tony says, "Please come back Taylor". Olivia says, "I love you Taylor and I hope your surgery went well and I hope you get better soon." Isaiah says, "We miss you." Kartik says, "Come back soon. We are waiting for you." Ethan says, "I'm sorry that you got crashed in a car and I wish that you could come back." Jackie says, " I wish that Taylor could play with me." Tessa says, " I wish that Taylor could come back."
Xavier says, "I miss you alot." Diego says, "Have fun in your new room." Deztiny says, "Taylor,I like you. Come back soon." Leia says, I love you Taylor and I wish you lots of love. I'm having a fun time." Jayce says, "We miss you. Did you like the Chrismas Video?" and Damon says, "Come back Tylor." We need to start class now, so have a great day. Get better and I'll see you soon. I have lots of work for you to do and a planting project for you. Love you lots. Room 28 Mrs. Knecht.
Taylor,
You are an amazing little girl. You are very strong. Glad the surgery went awesome. Keep it up and up will be up and at it before you know it.
Good Luck,
Sara (Ramsey) Collett
WhooHoo! Another positive step in the right direction. I bet it will feel great to talk out loud again! And mom will be thrilled to hear- Mommy- again! :)
Hi Taylor-
I talked to your Aunty Lyss yesterday and she told me how well your surgery went. That is so great! She also told me about your pretty pink stroller with your name on it- it sounds very cute! Good luck with the recovery from your surgery. We are all praying for you everyday.
Love,
Courtney, David & Emma Adams
Good morning Taylor. I'm glad the surgery went well. We have been thinking of you lots and can't wait to see you!
Lots of love,
The Gardner Family
to Taylor, Dad and the Parker family: our thoughts and prayers are with all of you each and every day. Ralph/Caren Stegall
Dear Taylor,
Although I do not know you, I have read about you in our local newspaper and your story has touched my heart. I am a nurse and I grow very close to my patients, I can only imagine how much your nurses must adore you!
Stay brave and know that you are in my thoughts and prayers. :)
~Jennifer (Woodland, Ca)
Dear Taylor,
We are so happy to hear that your surgery went well, and we cant belive what a brave girl you are! Keep up all the great work!
Lots of love,
Madison McCain and family
We are so glad to hear about the great news and that your surgery went well. We pray for you daily
Love & Prayers
Hamer Family
(Dave, Tammy, Miranda & Daniel)
Dear Taylor, Tammy & family,
we are so glad to hear how well Taylor's surgery went. I know how stressful times like these can be and I want you to know that my thoughts and prayers are with you. I am so proud of you Taylor for your courage and strength. Tammy, be strong and know that you are not alone. There are others of us out here that have childern with special needs and we can be a great support system to you when and if you want it.
Love and prayers
Penny & Jennifer Lara
Taylor...YOU ROCK! You continue to be an inspiration to our family and our thoughts and prayers are with you and your family always.
The Floyd Family XOXO
Hi Taylor:
I am thrilled to hear how well you are doing after surgery. You don't know me but I went to school with your mommy in Woodland and your grandpa Doug and my father-in-law Steve Godden are great friends. I have heard such wonderful things about you. Shriners is a fun hospital isn't it? My son Hunter was there for surgery when he was a baby. It is really fun when they bring the animals around to visit. I hope you get to do that also. I wish for you a fast recovery for such a beautiful girl and look forward to reading more updates on your website.
Take care.
~Lisa (Laugenour) Godden~
Hi Taylor,
We are so happy to hear you are doing well and that your surgery went well. You are such a strong and brave girl. We think of you all time and keep you in our prayers. You are very loved!! Please say "hi" to your mom from me.
Hugs to you!!
Miss Tami and family
Hi Taylor,
We want you to know that we think about you and miss you everyday. We are so proud of you for making it to the Shriner's hospital and are so happy to hear that you will soon be able to talk out loud. I've been to the Shriners Hospital where you are at before, and it is a beautiful place. Taylor stay strong and give your mom a big smile for me.
Hugs,
Shannon,Chris,Emma,Allie and Ava
sounds like you are making tons of progress....I hear updates fequently from your neighborsin Amber grove- everyone is so proud of you and misses you an awful lot.
hi taylor i'm from yor school emma wilson you probly dont know me but you are such an insperation to me well keep up the good work.
Hi Taylor,
I hope you get well soon. I'm so happy you're surgery went well. Keep on doing your thing.
Hi Taylor,
We miss you so much already! We really loved getting the chance to spend some time with you when we were in town. I especially loved putting on make-up with you, and putting sparkles on your mommy and daddy. You are so brave, keep up the good work!
Love you, Katie and Kris
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