The doctors have started the process of weaning Taylor off of her ventilator. Her first treatment occurred on Monday. Taylor was breathing with assistance from the pacer and without the ventilator for about 20 minutes. The doctors were very pleased with the results. Taylor did not seem to notice the difference between breathing with the ventilator and breathing with the pacer. The plan is to increase the amount of time that she uses the pacer each day.
The doctors have not yet installed a talking valve on Taylor's tracheotomy, but she is talking well without it. She spoke on the phone to a couple of her friends the other day. She really enjoyed talking with her friends again.
Taylor has been able to get out of her room and stroll through the halls of Shriner's Hospital. It's really an amazing facility. They have an area for playing games and have a lot of floor to ceiling windows. Taylor has not received her own chair yet, but she continues to use a loaner. The design of the new chairs is fascinating. They only weigh 35 pounds and can be folded up like a stroller.
Taylor continues to receive electrical stimulation therapy.
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7 comments:
Yes! Yes! Yes...Taylor! You keep trucking along. We are beleiving in you.
Taylor,
Hi sweetie! I am so happy to hear that you were able to breath on your own for so long! That's awesome! Keep up the hard work. Travis still talks about you alot. He wants to know if you like your new room. He asks alot of questions about you and I share as much as I can with him. He sure does miss you Taylor. So you talked on the phone? I bet that was a highlight of your day! Maybe Travis can call you sometime soon! That's it for now, sweetgirl! Tell Mommy we all said hello!
Lots of love,
Kim Gardner
Yipee!! We revisit the Taylor story quite often at our house. My kids are so curious about the details of your life!
Shriners sounds, well to quote Miss Stacy, Sweet! Love all the windows, the pink wall, and cool play spaces!
Talking on the phone, is it pink too??
Love to hear the good news . . . keep up the great progress.
We are praying for you everyday. Courtney, David & Emma
Taylor,
I can't believe you were breathing without the ventilator for a whole 20 minutes! I bet everyone who was there thought it was amazing to see. And you get to cruise around the hospital and check it all out- that must be fun. Next time the music lady comes by, ask her to sing "Under the Sea," and make your mommy dance to it again. That was funny, huh?
We love you so much! Katie & Kris
Hi Taylor, keep up the fabulous progress, we are praying for you and your family every day.
The Floyd Family
Sissy, I am so proud of you. I miss you lots and lots and I can't wait to see you soon. I love you so much. Hope you feel better soon.
Love
Mr. Man
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