The doctors replaced Taylor's tracheotomy with a smaller one yesterday. She is now able to talk on her own. It's great to hear her voice! The doctors have tentatively set January 22 as the day when they will begin weaning Taylor off of her ventilator.
Taylor started electrical stimulation therapy on her upper arms. The electrical stimulation causes her arm muscles to contract. Slowly she should begin to gain back some of her lost muscle tone. The goal is to perform electrical stimulation at least 20 minutes per day. They are starting the therapy on her upper arms and will begin stimulation on her legs soon.
Taylor's appetite has been increasing everyday. The doctors are happy to see her eating and hope that she will gain some weight.
Taylor now has a Flickr photo group. You can add your photo(s) to Taylor's Flickr photo group pool. We welcome photos of you, your children, your grandchildren, your pets, beautiful things you've photographed--whatever you think would make a 5-year-old girl smile. If you don't have a Flickr account (they're FREE at www.flickr.com) or don't want to set one up, you can email your photos to taylorparkerfanclub@yahoo.com and we'll post them to the Flickr pool for you.
Directions for Flickr users :Upload the photos you want to share to your Flickr account. To become a member of Taylor's group, go to "Groups" at the top of the Flickr page and in the pull-down menu, click "Search for a Group." Type Taylor Parker Fan Club in the search box to get to the link for her group and add yourself as a member. To send your photos to her group's pool, open the photo you want to send (by clicking to enlarge it)--a small set of icons will appear above the photo. Click the second icon, "Send to Group" and a pull-down menu with her group's name will appear so you can click it to send the photo. That's it! Click the flashing badge on the right sidebar of Taylor's homepage to go to Taylor Parker Fan Club on Flickr and take a look!
Subscribe to:
Post Comments (Atom)
7 comments:
I can not imagine how sweet that was to hear Taylor speaking... Way to go Taylor! What is that stimulation like?? Force lightening? Working towards a goal is a good thing, instead of stable, huh? It is good to hear more good news!
I'll look around for some more fun photo's to share!
Dear Taylor,
I am so glad your muscles are getting a work out to help them grow. They will be strong again before you know it. And you must be happy to be able to talk again. I have to say, you were very good at getting our attention even without being able to talk. You are such a tough girl, and ever day I think about how proud I am of you and how much I love you.
Hugs and Kisses from Sweden!
Hey Taylor. I bet you are talking up a storm. That is such great news. Tommy and I think about you every day and send you lots of love and kisses. I can't wait to see your new digs the next time we are down that way. Let me know what color Aunt Melissa painted your toes and fingernails so that I can have the same color at my next manicure and pedicure.
Say "hi" to Walter. Hope he is behaving hiself!
XXOXX from Klamath Falls!
I just sent you a very funny photo of Miss Kerri and I that is sure to make you smile!! I laugh every time I see it and thought you would giggle about it too (Shhh!! Don't tell Miss Kerri, it's probably not her favorite photo...Mine either, but if it makes you smile, it is worth it!!) I am loving hearing all about how great you are doing. Keep it up, Sweetie, and give Mom a kiss for me!!
XOXOXO- "Miss Stacy"
Hey Tay- I was so excited to see you in the hall today. I bet it felt so good to get out of that room. You looked so pretty! Presley wouldn't stop talking about you when we left,she was so sad. That just means next time you'll have to call us and well come over to walk with you. I love you more than you will ever know and pray that your cousins grow up to be just like you in every way!
Love you lots- Aunt Lissy
Oh Taylor, this is such good news. I bet your family and friends are so happy to hear your voice again. You are such a strong and brave girl. I am constantly inspired by you.
Know you are in my thoughts and prayers!
Much love and hugs,
Denise (Boho Girl)
Hi Taylor,
I am so happy to hear you are talking and you are receiving electrical stimulation to you arms. I am praying for you, your Mom and your family ALOT! Please know that you are very special to so many people and that you are remembered! May the love of God surround you and your family always and in all ways!
Love,
Linda Knapp
Post a Comment