This is a big week for Taylor, as it is her birthday this Friday, March 30. Taylor will turn six. She is excited to see some of her close girlfriends that will be coming down on Saturday for a Spa Day at Shriner's Hospital!
Taylor and her family plan to spend the remainder of the weekend taking it easy. Taylor has moved out of ICU and is now back on the third floor. She is breathing with assistance from the pacer during the day and remains on the ventilator at night. The doctors have not determined the reason Taylor was not getting the appropriate volumes with the pacer, but everything seems to be working well now.
Taylor is back to her same daily routine of spending the morning with her teacher and the afternoon doing physical therapy. She is once again doing her physical therapy on the bike.
Tomorrow is the lunch at the Arbuckle Golf Course to benefit the Taylor Parker Hope Fund. For more information, see the March 1, 2007 blog update.
Thanks for your continued love and support!
Wednesday, March 28, 2007
Saturday, March 17, 2007
Update March 17, 2007
Taylor has been transferred back to the ICU at Shriner's. The doctors have not determined the reason that Taylor is not receiving a proper breath with the pacer, so they think that it is best that Taylor remain in the ICU while she remains on the ventilator.
The doctors have replaced Taylor's smaller tracheotomy with a larger cuff trach. The doctor's were concerned that her trach. might be leaking air and that might not be allowing her to get a large enough breath with the pacer. Taylor is still able to talk with her new trach., but just not as easily.
The doctor's plan to start Taylor on the pacer in a couple of days. They are hoping that she responds to her pacer after her diaphragm received a short break from the pacer. If she responds well to the pacer, then the plan is to place Taylor on the pacer during the day and on the ventilator at night.
We will keep everyone up-to-date on Taylor's progress. We appreciate everyone's thoughts and prayers.
The doctors have replaced Taylor's smaller tracheotomy with a larger cuff trach. The doctor's were concerned that her trach. might be leaking air and that might not be allowing her to get a large enough breath with the pacer. Taylor is still able to talk with her new trach., but just not as easily.
The doctor's plan to start Taylor on the pacer in a couple of days. They are hoping that she responds to her pacer after her diaphragm received a short break from the pacer. If she responds well to the pacer, then the plan is to place Taylor on the pacer during the day and on the ventilator at night.
We will keep everyone up-to-date on Taylor's progress. We appreciate everyone's thoughts and prayers.
Monday, March 12, 2007
Update March 12, 2007
Taylor has been doing well on the third floor. She likes her nurses and is sleeping through the night. She is also eating and drinking on a regular basis. The doctors are happy to see that she is gaining some weight.
Taylor continues to enjoy visitors, especially her friends. She was excited to see her friends Avery and Tara this past weekend. She also got a special out-of-town visit from her Uncle Brian and family.
Lately, Taylor has been having problems getting deep/full breaths with her pacer, so she is back on the ventilator until the doctors can determine the problem. The pacer and Taylor's diaphragm appear to be functioning properly, so the doctors are having to go through a trial and error process to figure out the problem. For now Taylor is staying in bed. This means that she's not able to ride her bike until doctors give her clearance.
Taylor continues to see the tutor. She's enjoying school and has been learning a lot of new words!
To call Taylor, call the Third Floor Nurse's Station at (916) 453-2156 and asked to be transferred to Taylor Parker's Room.
Thanks for your continued love and support!
Taylor continues to enjoy visitors, especially her friends. She was excited to see her friends Avery and Tara this past weekend. She also got a special out-of-town visit from her Uncle Brian and family.
Lately, Taylor has been having problems getting deep/full breaths with her pacer, so she is back on the ventilator until the doctors can determine the problem. The pacer and Taylor's diaphragm appear to be functioning properly, so the doctors are having to go through a trial and error process to figure out the problem. For now Taylor is staying in bed. This means that she's not able to ride her bike until doctors give her clearance.
Taylor continues to see the tutor. She's enjoying school and has been learning a lot of new words!
To call Taylor, call the Third Floor Nurse's Station at (916) 453-2156 and asked to be transferred to Taylor Parker's Room.
Thanks for your continued love and support!
Thursday, March 1, 2007
Update March 1, 2007 & Fundraiser Info.
Taylor is enjoying her new room on the 3rd floor. She is now in room 336. See the right side of the home page for Taylor's new mailing address. Taylor started school this last Monday. She has a private tutor and works on her schoolwork from 9:30 am to 11:30 am. In the afternoon Taylor rides her bike for about 1 hour.
Taylor has been sleeping through the night since she moved to her new room. The lights go out at night on the third floor, unlike in the ICU where the lights seemed to be on at all hours. Taylor has also been eating more, which makes the doctors very happy.
Taylor can have guests on the weekends, but the family asks that you call before you come visit. The next update will include Taylor's new phone number.
There are three upcoming fundraisers to benefit the Taylor Parker Hope Fund:
1) March 17 from 5:00 pm - 8:00 pm in Gridley at the Guardian Building. Admission is $12 for adults and $7 for children 12 and younger. Admission will include a dinner catered by Casa Lupe Restaurant. A silent auction will also be held at the event. For more information contact Julie at (530) 570-6630.
2) March 29 at 1:00 pm at the Arbuckle Golf Course. Admission is $50 per person. Admission includes a tri-tip lunch, wine tasting, and a raffle for tickets to a Kings game. A silent auction will be held at 3:00 pm for 5 nights at a condo in Kauai, 5 nights at a condo in Puerto Vallarta, use of a duck blind for a weekend, and four tickets to a Kings game. For more information contact (530) 473-3433. We would like to thank the sponsor of this event - Foothill Warehouse. If you would like to play golf before the event, please call Andy at (530) 476-2470 to set up a tee time.
3) May 5 at the Elks Lodge in Woodland. Cocktails at 5:30 pm (no-host bar) and dinner at 6:30 pm. Tickets cost $40 per person and can be purchased at the door or by calling Melissa at (530) 669-7156 or (530) 666-1450. You may want to purchase your tickets in advance because the Elks Lodge can only accommodate 250 people. A tri-tip dinner will be served and a DJ will be on-site for the dancing portion of the evening. The evening will also include door prizes and a raffle.
Taylor has been sleeping through the night since she moved to her new room. The lights go out at night on the third floor, unlike in the ICU where the lights seemed to be on at all hours. Taylor has also been eating more, which makes the doctors very happy.
Taylor can have guests on the weekends, but the family asks that you call before you come visit. The next update will include Taylor's new phone number.
There are three upcoming fundraisers to benefit the Taylor Parker Hope Fund:
1) March 17 from 5:00 pm - 8:00 pm in Gridley at the Guardian Building. Admission is $12 for adults and $7 for children 12 and younger. Admission will include a dinner catered by Casa Lupe Restaurant. A silent auction will also be held at the event. For more information contact Julie at (530) 570-6630.
2) March 29 at 1:00 pm at the Arbuckle Golf Course. Admission is $50 per person. Admission includes a tri-tip lunch, wine tasting, and a raffle for tickets to a Kings game. A silent auction will be held at 3:00 pm for 5 nights at a condo in Kauai, 5 nights at a condo in Puerto Vallarta, use of a duck blind for a weekend, and four tickets to a Kings game. For more information contact (530) 473-3433. We would like to thank the sponsor of this event - Foothill Warehouse. If you would like to play golf before the event, please call Andy at (530) 476-2470 to set up a tee time.
3) May 5 at the Elks Lodge in Woodland. Cocktails at 5:30 pm (no-host bar) and dinner at 6:30 pm. Tickets cost $40 per person and can be purchased at the door or by calling Melissa at (530) 669-7156 or (530) 666-1450. You may want to purchase your tickets in advance because the Elks Lodge can only accommodate 250 people. A tri-tip dinner will be served and a DJ will be on-site for the dancing portion of the evening. The evening will also include door prizes and a raffle.
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